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Where Am I?
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IT IS BEDTIME AT TICK TOCK MANOR, things are done right on time at Tick Tock Manor. Contrary to a sleepy thought, one hears Sam down the long corridor, shouting “Help, help, help.....” When the caregiver approaches Sam, “What’s wrong Sam?” “I want to go home,” cries Sam. He is sitting in his wheelchair, staring at the “EXIT” sign. Here comes Elsie, doing her wheelchair shuffle, up and down the long hallway. When asked if she is ready for bedtime, Elsie replies, “I am looking for my pet doggie, have you seen him?” She adds, “My doggie is lost on this long road.” Mary goes by, picking up extra towels and briefs from the care cart as she passes by each of the others. Mary never wants to run out of supplies. One of the nurses attempts to convince Mary that she won’t be needing these things. Mary takes a good swing at her. Gerry is being wheeled along in his wheelchair by his companion. “Are you ready for sleep time Gerry?” asks the caregiver. “I am waiting for a taxi,” says Gerry. Ingrid has a pair of scissors in her hand, and she is standing beside a picture of a bouquet of sweet-peas, poised to snip a stem. “Would you like to get ready for bed Ingrid?” She shakes her head, not understanding. The caregiver gives up. Florence is not wanting to change her clothes for bedtime. “No, no, no,” cries Florence. Her caregiver struggles to remove the clothes anyway, and discovers later that Florence only wants to save these same clothes for wearing tomorrow. Sam, Elsie, Mary, Gerry, Ingrid, and Florence live at Tick Tock Manor because they have been diagnosed with Alzheimer’s disease and related dementias. This is one bedtime at Tick Tock Manor when things will not be done quite on time.
Abstract Utilizing the Professional Environmental Assessment Protocol (PEAP, 1994), organized with respect to eight therapeutic goals judged to be significant in the provision of dementia care, this paper will illustrate selected environmental features commonly found in Special Care Units (SCUs). This timely approach to care has been selected, allowing persons with Alzheimer’s disease and related dementias to live out their dementia in any manner they will live it out. Before The clinician in charge invited me to visit Tick Tock Manor, a Special Care Unit (SCU) to make some observations. Naturally, in these times of tightening purse strings on our health care system, this clinician is looking for low-cost solutions for improvement in the environment. It is well known that there is no known cause and no known cure for Alzheimer’s disease. Before any of us get too depressed about this fact, we do know that one of the very best goals in treatment for Alzheimer’s disease lies in the environment. In fact, when we lift the disease and embrace the person, one of our very best treatments is the environment. In particular, this clinician is looking for ways to modify the environment in the SCU. The very first feature I noted when entering the dementia care unit was the long, dark hospital corridor. (PEAP - therapeutic goal is to maximize safety and security). In the case study, Elsie is searching for her lost doggie on ‘this long road.’ Secondly, as we walked along, I noted there were many, many pictures hanging on either wall, narrowing the corridor even more. The environment for persons with dementia should be neither over stimulating nor under stimulating (PEAP- therapeutic goal is to regulate and provide quality of stimulation). The clinician agreed that many of these pictures, such as a medieval castle or a Christmas flower, were disorienting even for the mentally alert individual. There was common agreement that it might be a good plan to remove the pictures. And she added that they already have some cans of paint that can be used to paint the walls in more pastel shades, eliminating the sense of darkness. This simple modification will be cost effective as well as enhancing the environment for persons with dementia. As a plan to eliminate the perception of the long hallway, I suggested making three clusters along the way, utilizing benches at each cluster. The first bench will be a place where individuals can sit and look at the fish pond. The next stop along the way, there will be a bread maker. Who doesn’t love to smell fresh bread? And at the third cluster, there will be some nice soft classical music playing, where persons can sit and relax. This concept really draws the person to come and sit and relax while eliminating that feeling of the long, dark corridor (PEAP- therapeutic goal is to facilitate social contact). Gerry, who believes he is waiting for a taxi, can sit on one of the benches and talk to the fish as a form of distraction. One thing I have learned very early in working with this population is that there seems to be nothing wrong with the person’s reading ability. In fact, many persons with dementia read very well. Everywhere in this SCU was signage, for example:
Persons with dementia are constantly searching for meaning in their environment; they are drawn towards persons or things that will assist them to understand their reality. The goal is to keep the person connected with their reality; so why not have a real bouquet of flowers on the table rather than a picture (PEAP- therapeutic goal is to regulate and provide quality of stimulation)? As with Ingrid, she is trying to make sense of the world around her while snipping the sweet peas in her garden, persistence of a long-term memory. Another major factor in our environment involves the people in it. As we were strolling through the SCU, I heard one of the professional care partners say in a loud, impatient voice, “Hurry up Florence, I already told you it’s your bath day” (PEAP- therapeutic goal is to support functional abilities). As depicted in the case study, Florence refuses to change her clothes; she has lived in an era where one simply did not change their clothes on a daily basis. Perhaps her care partner needs to communicate with Florence in a more respectful manner. I later asked the clinician, “Is that care partner dementia friendly?” As persons with dementia are constantly searching for meaning in their environment, it is absolutely critical that their care partners are communicating with them in a manner that is both orienting and friendly. As in the case study, Mary is collecting briefs and towels from the cart (PEAP- therapeutic goal is to provide opportunity for personal control). This menial task allows Mary to exercise personal preference, choice and independent initiative to determine what she will do and when she will do it. After The first thing I noted in the SCU was that the walls were now bare of pictures. And the old dark paint had been replaced with a very delicate eggshell colour. These simple modifications gave the illusion of making the hallway brighter and wider. Secondly, I could see individuals sitting at one of the benches down the long corridor, gazing at the fish pond. As I came closer and introduced myself to Gerry, I witnessed a huge smile on his face as he was admiring the fish. “I like this,” smiled Gerry. The bread maker was not in operation this day; however, the reports from the previous day was that the aroma of freshly baked bread was highly successful in comforting the person with dementia. The clinician at Tick Tock Manor agrees that signage, such as ‘EXIT’ may possibly pose a problem for Sam and others who are wanting to go home. However, this environmental feature is critical in meeting the Fire and Safety regulations. Persons with dementia are always searching for home. But are they really searching for the place or are they searching for the feeling of comfort (de Geest, 2006)? Following is an example of a highly successful communication, when Claudia, a care partner of Dorothy, engages with Dorothy in a dementia-friendly manner:
A puppy dog now lives at Tick Tock Manor; he merrily is romping up and down the hallways, stopping only briefly to sniff and visit with friends along the way. Elsie looks on, smiling. Finally, it was evident that the atmosphere in general, was calm and relaxed. I engaged with one of the care partners working that day in SCU, and she reported, “I am amazed how much calmer the people are since these few changes were put in place.” Professional Environmental Assessment Protocol Criteria (PEAP) Maximize Safety And Security
Maximize Awareness And Orientation
Support Functional Abilities
Facilitation Of Social Contact
Provision Of Privacy
Opportunities For Personal Control
Regulation And Quality Of Stimulation
Continuity Of The Self
References: Gwendolyn deGeest RN,BSN,MA is the author of “Where am I?” She has been working in dementia care for over two decades and has witnessed the joys and sorrows of families struggling to maintain a quality of life for themselves and their loved ones. Gwendolyn’s thesis, “The Relation Between the Perceived Role of Family and the Behavior of the Person with Dementia” is published in the American Journal of Alzheimer’s Disease, May/June, 2003. This work was presented at The International Congress of Gerontology, Vancouver, Canada. Gwendolyn resides in Vancouver, with her family where she is a professor. Gwendolyn welcomes your questions/comments at gmdegeest@cruiserespite.com |
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